Sarah & Danny’s Story
Sarah is a good friend of mine, whom I met online. Her son Danny is adorable, as you’ll see below! I am very honoured to have been asked to post on Maya’s blog. Her help and support has been invaluable...
View ArticleFundraiser for Sarah & Danny
Today, I want to ask all of you for some help. Last spring, my friend Sarah guest posted her son Danny’s diagnosis story. Danny is a few months older than Baby J and is severely affected by Marfan...
View ArticleSo Your Child Just Got Diagnosed With Marfan Syndrome
Curiosity about Michael Phelps aside, it appears most people find this blog when their child is diagnosed with Marfan (as opposed to coming across it for later stage Marfan information, autism...
View ArticleStephanie and Logan’s Story
While I’m away at the National Marfan Foundation conference and vacation with my family, I will have a few guest posters from the Marfan community. Today’s post is by fellow Marf Mom Stephanie. I love...
View ArticleSadness
Yesterday, a blogger said goodbye to her son. Yesterday, another friend buried her baby. Yesterday, someone bombed the Boston Marathon. Sometimes, the world seems full of sadness. I am full of sadness....
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